Author Archives: lpfnit

Contradictions in life are always assured. Michele is losing her hair again and feeling stronger today than in the last couple of months. Today we slept in and then started working in our pajamas. Her Cancer is both in remission and being treated. What is in the name? Hyper-CVAD is the specific regimen to combatContinue reading “Hyper-CVAD?”

So, we have a first! Her numbers were good enough to not need any transfusions yesterday. BUT! Not good enough to start another round of Chemotherapy. To borrow from my good friend Kevin… Two weeks! We are excited There is a lot of schedule shuffling that happens when under treatment. This weekend we have ourContinue reading “Numbers were good… But?”

The weekend and week so far have been quiet. Well at least for the Cancer! Our son Andrew and daughter-in-law Andrea visited over the weekend. We laughed and ate well. Saturday was a lovely day outside. We spent it as much as we could in the back yard with the corn hole game and chairsContinue reading “Quiet week (somewhat)”

Since Saturday we have had some decent days. Thank you to Phyllis Domingue for taking the early morning shift on Tuesday. They arrived at 6:00am for the blood draw. Her platelets were low again and they needed to do one more transfusion. Thankfully, it is a short transfusion, and they were home midafternoon. Massage timeContinue reading “She got a massage today”

We had a sense that her numbers were still low yesterday. Somedays there is just a fog in the head that you can’t shake. It isn’t necessarily one thing, but you just know. We both had what I would call an emotionally exhaustive day yesterday (Friday). On those days, we try not to be harshContinue reading “Saturday is for wheelchairs”

We anticipated a short day today. Usually it is blood draw, results review, and then home. But today here numbers are still down. Platelets today are at 5 and the normal zone is 140-440. So instead of home by noon, we are expecting to be here until about 6pm. Steroids give you energy! Sunday throughContinue reading “Its Thursday, must need a transfusion”

There are seasons of time you want to put behind you. I am glad to say we have put this last month behind us with this last chemo dose on Sunday. Another bonus is they have put us on once-a-week blood work for now. Michele has been feeling a little better the last two days.Continue reading “Cycle 5 chemo complete”

But… before this today… Yesterday was a decent day. We had some work being done at the house in the morning and we were having a slow but steady day. It was a great day as well. Sun was shining and I managed to even get a little sun over lunch time. I could tellContinue reading “It’s Saturday, must need a transfusion.”

We got home on Tuesday afternoon. Happy to be home. Almost done with the chemo for Cycle 5 Michele checked in to the hospital on Thursday night. They started the first Chemo Treatment late that night. It gets confusing on tracking this information. Day 1 started at 11:00 on Thursday night. I almost must trickContinue reading “Home Again”

This past week, we joined a zoom with 8 other Leukemia Patients in an MD Anderson support group. It was enlightening and scary at the same time. The common theme with everyone was the disruption to life. All are current patients, and some were zoomed in from their hospital room or waiting room. It isContinue reading “Preparing for Cycle 5”