Category Archives: Uncategorized

Hello everyone. It has been a while since I last posted. There have been both good things happening and some scary. The Numbers Michele’s numbers are climbing… slowly. Something that has been slower to happen than we anticipated. We are scheduled for more blood work and doctor visit this coming Tuesday. When we last talkedContinue reading “Been a while!”

When we visited the doctor last week, Michele was not feeling well. Her stomach was giving problems and she was overall feeling weak. The Doctor told her to stop the “Chemo” pills she had been taking and take a break for a week. She was happy about that! Yesterday we met with our doctor again.Continue reading “It’s been a good week”

A few updates for everyone this evening. Omaya The reservoir is staying in. After talking with the Neurosurgeon, it was decided that there really is not a thing called Elective Brain Surgery. There are a small number of reasons to crack open the skull and try and remove a sippy straw from the brain. Infection.Continue reading “Wrapping up Cycle one”

We are becoming increasingly normal in our daily routines now. Michele does Physical Therapy a couple of times a week. She can drive so that has been great news. Last week was busy for sure. I think we will expect that kind of week once a month. Check out Michele’s new Insurance blog @ insurancematters.substack.comContinue reading “Settling into Maintenance”

We are now halfway through our first cycle of POMP. Our numbers are a little low and but are holding. Everything to be expected as our doctor says. Our Tuesday Even though we are old school now going to the medical center only a couple of times a month, we found a new trick. TheContinue reading “Half way through…”

Have you ever looked at a calendar and thought something must be wrong? That happened today to both Michele and me. We have become so adapted to checking our MYCHART calendar each week to plan out our days that we both were struck that there was nothing until Friday! I think we both double checkedContinue reading “Fight for Normalcy”

Today we started our Maintenance cycle. I learned a new term. POMP cycle. P – Purinethol (6-Mercaptopurine)O – Oncovin® (Vincristine)M – MethotrexateP – Prednisone https://www.chemoexperts.com/pomp-maintenance-all.html Where are my band geeks wondering when the Circumstance cycle begins? Today was busy for sure. After dropping her off at 9:40 for the lab work at the League City MD Anderson location I had my own schedule! IContinue reading “Maintenance?”

We are with our flying friends in Fredericksburg TX this weekend! After a crazy year it was good to get our wings under our feet. As we sit here visiting with our friends we have made over the years, it is like yet another reunion. Here are some more pictures from our flight this morning.Continue reading “Happy Labor Day!”

Last week we had a busy day professionally. We made it out to WACO TX to visit one of our insurance carriers, American Amicable. It has been a long journey for us to be able to make a trip like this. The pace of the “event” was perfect for Michele. We drove in and aContinue reading “Gearing up for Maintenance”

I am pleased to let everyone know that our trip to California was an enormous success. It is overwhelming to tell you that everything from the flight to the visit, to the house, to the flight home was for the most part smooth sailing. For the most part… Why did I say that? The firstContinue reading “We survived Cali!”